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      "body": "__Real, long-lasting health is the aim of the game here, but, despite hopes of remission, any talk of a cure for rheumatoid arthritis (RA) is premature. This post is about finding mental strategies to cope with physical pain and an uncertain future.__\n\n<center>![](https://www.headspace.com/images/home/orange-breathing-character-dd9acb0bd7c7008a5e56799cd380fcc7.gif)\n<sub>[Headspace](https://www.headspace.com/) - Meditation made simple</sub></center>\n\nStudies have found that diets high in fish, olive oil, and vegetables can dramatically reduce the severity of RA and rheumatoid-like arthritis, and this has been my experience. But while pain is not something I generally have to deal with nowadays, I do still have the bloodstream biomarkers for RA - currently higher than they’ve ever been - so I’m not out of the woods yet. RA is not an easy diagnosis, and I’ve found it’s important to have some mental techniques for handling it better. Here are my top three:\n\n\n# Step Outside Yourself / Count Your Blessings\n___\n\nSometimes it feels like life is passing us by. This can be especially true when pain is a regular and demanding visitor, and even with negligible pain I still find myself slipping behind walls in the mind, where gloomy thoughts lead to dark spaces.\n\nSometimes pain is completely overwhelming, and then the walls are naturally as tall as mountains. But other days, it’s possible to at least peek over the parapet. Whether it’s the sun warm against your skin, or a good talk with somebody you love, it’s important to vividly and meaningfully connect with the world outside, and really notice yourself in it.\n\nWith this in mind, I urge you to head over to the vlog *Healing Josefine*… Yes, physical pain can be all-consuming, but if today there’s room for other thoughts too, [What Else is True?](https://www.youtube.com/watch?v=H5I2AZgRyVA)\n\n\n# Step Inside Yourself / Try Bite-sized Meditations\n___\n\nFor me, this is about taking focussed time out to declutter the body’s attic. Meditation is something I’ve tried on-and-off, with varying degrees of success. At the moment, I’m using a meditation platform, called [Headspace](https://www.headspace.com/).\n\nRather than trying to force particular breathing patterns or a clear mind, which can feel oddly strenuous or fake, the Headspace approach - at least in the initial daily sessions of 10-minutes each - focusses on observation and natural rhythms.\n\nThe monthly and yearly subscription options are a bit pricey, but you can currently get the first year free if you sign up with the code, __GSML1Y__ ([redeem code](https://www.headspace.com/code)). Your guide is a former monk who can juggle, so you’ll be in safe hands.\n\n\n# Wash Out an Old Jam Jar / Become Your Own Mentor\n___\n\nSometimes we need a nudge to keep us moving forward. Inspiring yourself in this context is about seeing potential even if there are problems, which is easier or harder depending on your current mental state. For this reason, I keep a jar with rolled-up pieces of paper; These are breadcrumbs  to better emotions that I leave myself in case the way grows dark.\n\nEach paper has written on it a positive step I can take if not today then someday very soon. I can't unravel the next paper until I’ve completed the current item, which may be work-related or personal, vague or specific, but always manageable, e.g., *‘Ask for a pay rise’* or *‘Call someone you haven’t spoken to in a while’* or *‘Learn something new’* or *‘Go swimming outdoors’*… If I enjoy doing it, and if it makes sense to do so, then the item goes back in the jar to be picked again another day.\n\nI’d love to know what mental techniques others use?",
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      "body": "![](https://steemitimages.com/DQmdXXyudbwwy4yjbSchB8geW2p6sJwN6eeDjcdnWnYhtUo/lucas-gallone-228252.jpg)\n<sub>Photo by [Lucas Gallone on Unsplash</sub>](https://unsplash.com/photos/PVw_vtpCGaM)\n\nAutoimmune disease is an upside-down state of being, where your immune system - there to protect your body - attacks and destroys healthy cells in your body. People with autoimmune disease are connected; Each of us walks through life with some physical manifestation of an inner god that has seemingly turned against us.\n\nWhatever form your autoimmune disease takes, there is often pain. For me, this means red and swollen knuckles and knees. And more recently, I’ve developed red, scaly patches on my elbows, because the physical manifestations can multiply and change form.\n\nDrugs that suppress the immune system are the fulcrum in conventional medicine for restraining this inner god that behaves in bizarre and violent ways, but there’s no cure for autoimmune disease. We can’t vanquish a god we need, and sometimes the God of Pain becomes the God of Death.\n\nIn the absence of cures for autoimmune disease, many of us are pulled toward functional medicine, an approach that aims to address the underlying causes of disease. The best of this is still evidence-based medicine, but often a leap of faith is required. Common to all autoimmune disease is the idea of a ‘leaky’ gut, [which the NHS (UK national health service) refers to as a “proposed condition”](https://www.nhs.uk/conditions/leaky-gut-syndrome/), warning  we:\n\n> ... should be wary of treatments offered by people who claim to \"cure\" \"leaky gut syndrome\", as there is little scientific evidence to suggest they are beneficial for many of the conditions they are claimed to help.\n\nMy marauding inner god started terrorising my joints in November 2011. Over the years, my clinical symptoms and other patterns have changed. Currently, flares are markedly less frequent and less painful, and recent blood tests showed markers of inflammation all within normal limits, but also one specific marker for rheumatoid arthritis that is now a “high positive” where before comparable tests have always been a very weak positive. Despite this diagnostic and prognostic marker flashing 'amber', today - like most days now - I walk around like regular people, currently with no pain at all and only a little residual stiffness and loss of flexibility from joint changes in my left wrist. I am, so far, one of the lucky ones.\n\nIt’s my belief that, despite failing to always meet the accepted scientific standards, some functional approaches, and especially nutrition, are key to maintaining good health. Some but not all… While there is bountiful evidence that dietary changes can help people with autoimmune arthritis, there is nothing to support taking homeopathic remedies for any condition at all. Perhaps it is the clumping together of “alternative” approaches that makes it difficult for rheumatologists to talk (to patients at least) about the scientific evidence for dietary treatments.\n\nI value the NHS and the wisdom of the rheumatologist whose care I’m currently under. I trust him when he says not to worry too much about the high positive anti-MCV test, since my clinical symptoms are well-controlled. But I also think there’s a missed opportunity, that rheumatologists could and should be curious about the lifestyle choices of their multitude of patients, because pattern recognition can lead to actionable knowledge just as surely as laboratory research and clinical trials can. This is why I think patient-to-patient learning is essential learning for the individual with autoimmune disease; We have to find and share this information ourselves. \n\nAutoimmune disease is lonely. Pain is lonely. I feel stuck in my story, and I want to share and break free of it. I want to influence my narrative. I want you to influence your narrative too. I’ve consumed a lot of information alone in this room or that room, and applied it in my own quiet life, I think with positive results. But I’m still a person with autoimmune disease. I’m still a person with a puzzle to solve, a wrathful god to hold back. So I’ve come here, to Steemit, to surround myself with more people, because people are a great resource and it's time I levelled up my learning.",
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