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      "body": "OMG your welcome!  I totally think you made the right choice regarding radiation etc.   That stuff (and chemo) make me wonder what's worse ... that or the cancer itself!  I sincerely hope that all the treatment heals you and you never have to face this again!  \n\nBrian had tumors on his tongue and started taking CBD oil for it and the tumors totally disappeared!  Crazy!",
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      "body": "@@ -1100,8 +1100,58 @@\n rateful!\n+  So from all of us THANK YOU & GODDESS BLESS YOU!\n",
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      "body": "It was either 6 weeks of radiation or mastectomy & instead of spending 6 weeks of frying & dealing with a ton of painful side effects from radiation & then spending another 10 weeks healing, I decided one day of surgery & then immediately starting healing was preferable to the first.  It will be a relief to have it over, however I have qhat's called HER2+ which is a protein that makes my type of cancer aggressive.  If it returns and/or spreads, it's usually to the brain, liver or bones.  However they've made alot of gains in suppressing the HER2 with a few different meds, but most commonly is Herceptin which id administered via infusion, & that I'll receive every 3 weeks for about a year.  I am really hoping that that'll be it tho.\n\nBeing one with cancer, I have seen just how much caregivers do & omg!  I really don't think we could get thru it w/o you!  Mine is actually my roommate & some state ordered nursing staff.  My immediate family aren't reliable for anything really.  That's fine tho.  I tremendously appreciate those that are hear & helping.  It just amazes me & I'm forever grateful!",
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      "body": "I am just blown away!  I've been checking back periodically wonderinh how you both were doing.  Wow!  WOW!  Just amazing!  The power of love!  In my own cancer journey, I finished my chemo almost 4 weeks ago & have about 2.5 months before I have a double mastectomy.  I continue with a specific infusion every 3 weeks that deters a protein that makes my cancer be aggressive.  I'm on it for a year but there's no side effects for me.  \n\nI am still just blown away by your update.  You both look so good & I'm so happy to see this!  I think Brian will somehow continue to beat the odds & bless you very taking such good care of him!  Love to both of you!\nLu Anne",
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      "title": "",
      "body": "Hi lynn!  I have somewhat returned to Steem..but this isn't about that.  I see you have been resteeming & I hope you & Brian are as best as can be expected.  I am now fighting breast cancer -it's an early stage & i'll win.  It's nothing compared to what Brian is going & has gone thru as well as you.  I think about you 2 TONS & hope there's peace in your world.  I will continue to think of you 2....i wish I could do more!  \nLu Anne",
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      "body": "Why is he targeting me?  This post has nothing to do with him.  Wow",
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      "parent_permlink": "breastcancer",
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      "permlink": "what-they-don-t-tell-you-about-breast-cancer-chemo-part-1",
      "title": "What They DON'T Tell You About Breast Cancer/Chemo Part 1",
      "body": "![0311190206.jpg](https://cdn.steemitimages.com/DQmPfLNozHxZmrsp7wRGy5Lj82mQ9C4sfjDZ4J7Kbr7knDA/0311190206.jpg)\nSurgical Site of My Chemo Port\nImage Mine, @luanne\n\n\nSo I decided to squeeze in another post about stuff cause I don't know how I'll feel after the next infusion & it could be a long while 'fore I'm up to it.\n\nWhen you are diagnosed with not only cancer, but breast cancer, you instantly become part of a very special club.  I call it the Pink Brigade &/or Warriors. They welcome you with a smile, open arms & a soft sorry on their lips.  Some are in remission, or NED as they now call it (No Evidence of Disease): some are in their 2nd or 3rd battle & some are even closing in on the end of their fight.  \n\nWarriors in all stages are everywhere!  Tonight the cashier @ the grocery store was one & gave me a huge huge.  She's been NED for 10 years.\n\nAlthough tremendous advances have been made in fighting cancer & winning, death is still a very real factor.  We accept it, & when we get really scared our sisters in the pink brigade are the ones we mostly easily can talk to about it.  \n\n(Since the beginning of this year, I have been taking an informal count of people I've become aware of who have passed from cancer in this year.  It includes all kinds of cancer.  As of tonight, the count is at 18).\n\nThere are so many things they don't tell you about.  Everything from the difference in mammogram types to all the possible short term & long term side effects one can have for chemo.  \n\nWhile the general public are very familiar with breast cancer, what is not commonly known is all the different types.  \n\nDuctal Carcinoma (me) is one of the most common types along with Lobular Carcinoma.  With both of these there's invasive (me again) & non invasive.  \n\nWhen a questionable lump is found-most often via mammogram, (I actually found mine) the next step is a diagnostic mammogram with ultrasound.  If that still proves to be inconclusive, the next step is biopsy.  \n\n(As a general rule, about 80% of all lumps turn out to be benign). \n\nThe biopsy, albeit very nerve wracking for me, was also interesting.  There's nothing quite like being wide awake with a numb body part as a fairly extensive needle is pushed into your skin &  lump not just once but 3 or 4 times.  Yes that is correct.  THREE OR FOUR.  The needle is hollow & takes what is called a core.  It makes a drilling sound or, as was the case with me a large snap because the drill wasn't getting an adequate 4th sample so they changed to another piece of equipment.  All of this is not only displayed on an ultrasound right next to my left shoulder, but that \"drilling\" was going on just a smidge to the right of the center of my cleavage.  Refer to pic below.\n\n![500_F_167998690_KlEgzfftAsR0vC2yjiyjRXzuMMzbyUa8.jpg](https://cdn.steemitimages.com/DQmPoYE6RhZNt8V8e6RtuYjtCx6V6b5MXKGcxSTGm2hDuF2/500_F_167998690_KlEgzfftAsR0vC2yjiyjRXzuMMzbyUa8.jpg) \nPixabay Image, approx. location of my lump in my right breast.\n\nIt takes about a week before biopsy results are back & even then they're just preliminary.  They basically tell you what cancer you have, but further testing is needed to find out what stage.  \n\nMeanwhile, at least for me, I was extremely stressed out; my anxiety off the charts.\n\nOnce your preliminary type of cancer is determined, they then conduct further testing not only to determine stage, but grade & if it's horomone driven and/or protein driven.  \n\nOk here's where it gets a little complicated.  The stage of cancer basically is how far it's spread or not spread.  Grade is how rapidly it grows- in other words how fast the cancer cells multiply.  \n\nI am stage 2a & my grade cancer is 3.  The stage of my cancer was based on the size of my lump which was 2.2 cm. (.866 of an inch) Anything below 2 cm is considered stage 1.  I'm just barely over into stage 2, hence the 2a.  \n\nGrades of cancer run a scale of 1 to 3.  The higher the grade number, the more aggressive the cancer is.  Mine was technically estimated between 2 to 3 but for treatment purposes my plan goes with a 3 for better outcones.\n\nNext comes whether the cancer is horomone and/or protein driven.  Breast cancers can be estrogen driven, progesterone driven or both.  There is also a type of protein called HER2 that can also stimulate cancer cell growth. \n\nMy cancer is very very week estrogen positive (1.8% almost made the 1% crowd haha!) & strong HER2+.  Because my cancer is so weak estrogen but strong HER2, my treatment plan focuses on fighting the HER2 protein.\n\nHER2 protein occurs in everyone's genes, however it's majorly amped up in some cancer patients & can cause the cancer to grow & spread at an even quicker pace.  Until about 5 to 6 years ago, the success & life longevity rates for HER2+ cancers was pretty bad.  Science has made tremendous leaps & bounds tho, & now there are new treatments for HER2+s with a high success rate.  \n\nThe most common of HER2+ treatments is a drug called Herceptin.  I receive it with my infusions & then will continue to receive it alone monthly even after my chemo's done.  I will be on it for 1 year.\n\nWhen a breast cancer warrior is positive for both horomones & HER2, it's called triple positive.  When they are negative for all 3, it's referred to as triple negative.  Triple negative is considered to be one of the hardest to treat because successful treatment plans can be very elusive.  \n\nOnce the Drs have a complete cancer diagnoses, it is then determined what surgery, or surgeries, are needed as well as chemo and/or radiation.  \n\nIn my case, I was to have a lumpectomy-removal of my lump- along with the standard sentinel node procedure.  With respect to breast cancer the lymph nodes in the arm pit are one of the first places the cancer spreads too.  In order to determine metastasis (spreading of cancer), radioactive dye is injected in 4 different shots in the nipple of the affected breast.  Once all 4 shots are given, the patient then has to massage the nipple & breast for 15 minutes or so to help work the dye into the system.\n\n(They do numb you up but you still feel the dye when it's injected which is like the burn you get when getting a flu shot, & because we're oh so special we get it 4 times!)\n\nThe radioactive dye works it way to your lymph nodes so that the surgeon can see with special tools.  This way they don't have to go digging around in your armpit trying to find node #1. (They're pretty small). In my procedure nodes 1, 2, & 3 were taken to be tested for metastasis all of which came back clear.  \n\nSome warriors only wind up with a cppl nodes removed.  Others with several to many if the cancer has spread.  \n\nThe \"great\" thing about node removal-and I'm being sarcastic here, is that for some it can lead to what's called lymphedema.  This can happen regardless of whether one node is removed or 20.  All it takes is for the lymph nodes in a given area to be disturbed.  \n\nLymphedema is swelling in an arm or leg caused by a lymphatic system blockage.  It can be treated but there is no cure & it can be pretty darn painful.  With respect to breast cancer warriors, lymphedema can affect the arm and/or the breast on the same side of the body as where the node procedure was performed.  \n\nIn my case I seem to have developed lymphedema on the right side of my right breast & underneath the breast as well.  I haven't been officially diagnosed yet, but will be talking to my oncologist about it this week.  \n\nAfter my surgery, I was given 4 weeks to heal before starting chemo.  This actually wound up being 5 due to a lower abdominal wound I have that was a complication from the hysterectomy I had end of Nov.  The surgeon had to see me before I could start chemo.  The wound was actually healing pretty well lately but my chemo seems to have reversed/slowed down the healing process cause it was down to 1.3cm deep & now 2 weeks later it's 2 cm deep.  Cancer- the gift that just keeps on giving! 😕\n\nOk.  I think I've covered quite a bit tonight.  I will do my best to get back on here to go further into chemo, part 2, before I must surrender Thursday to my next chemo treatment.  \n\nStay tuned!\n\n![0105192347_20190107140228832.jpg](https://cdn.steemitimages.com/DQmcyKE2CHM3zyrVCmWQAhYRLjqvRVLk3Wr6RcDCqAkgjSM/0105192347_20190107140228832.jpg)",
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      "author": "luanne",
      "permlink": "re-tarakins-re-luanne-cancer-by-the-calendar-20190309t192317875z",
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      "body": "I highly HIGHLY recommend cannabis as part of the treatment plan for cancer.  It's sooooo helpful as well as amazing the difference it's made.  It's a huge comfort too as far as facing future chemo!",
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      "body": "Ty!  Not sure about the rock star part!  There are some pretty amazing women out there with BC who work thru it all AND run the house & kids!  Their strength is amazing!",
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      "body": "Ty!  Hugs back!  It is so wicked wrong that it's not legal on the federal level here!  I think big pharma secretly pushes to keep it that way!",
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      "body": "So glad you found cannabis.  It is helpful to know that you can relief from the effects of chemotherapy.  A friend of mine has cancer, could be useful to look into this.",
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      "body": "You are an absolute rockstar luanne. I'm glad you have access to cannabis to help with the chemo side effects. I think your motto is perfect. Big hugs!",
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      "author": "luanne",
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      "title": "Cancer By The Calendar",
      "body": "![Screenshot_2019-03-09-00-23-30.jpg](https://cdn.steemitimages.com/DQmT2DYGMFJ8rT9WWuVgyYKEV1V9ET8DZZhxSJxmZLpva4o/Screenshot_2019-03-09-00-23-30.jpg)\nImage by @luanne\n\nIt goes w/o saying that an update was overdue.  The crazy thing about time-when you have cancer- is how time seems to drag ever so slowly by and yet fly by at the same time.\n\nI am now one chemo infusion into my treatment.  I have a total of 5 more to go with #2 coming up on the 14th of March.  \n\nI am dreading #2.  Why?  I am scared that my side affects are going to be worse.  I belong to a few online support groups & out of curiousity I posed the question whether or not others found infusion #2 and/or #3 harder.  Taking such an informal poll really doesn't give you much insight into what your own experience because every single cancer patient is different.  The purpose it does serve though, is that it makes you feel less isolated.  Less alone.  \n\nMy first chemo started with bone pain stemming from the WBC stimulator shot they give you called Neulaste.  (I think that's the correct spelling but not sure).  It stimulates-overstimulates really- your bones to generate a ton of extra white blood cells to replace the ones the chemo kills.  This causes bone pain & w/ fibromyalgia thrown in on top of it, life was pretty painful for about 5 days.  The only thing that worked for the pain, was narcotics which I don't really like to take because it makes me sleep.  ALOT.   \n\nAround the morning of day 6, early morning, I awoke in even more pain- chest & side pain, & called my oncologist who in turn said to go to the ER which I did by way of ambulance.  A few MRIs later, it was determined that i had a Pulmonary Embolism (blood clot) to my right lung.  I was kept over night to stabilize me & get me started on blood thinners.  Approximately 31 hours later I was back home with blood thinners & oxygen, via nasal hose, firmly on board.  I will be on blood thinners for the next 3 to 6 months.  \n\nI later found out in my online support groups that blood clots are not uncommon during chemo due to the fact thst the chemo drugs damage red blood cells & the natural proteins that occur in our bodies that keep us from developing clots.  The same week that I developed my clot, at least 4 other women in my groups reported developing clots themselves.  \n\n![0309190048.jpg](https://cdn.steemitimages.com/DQmah3QmPr2WTEHe3DPU5YibCdcETTTLXeoVmVmHbWx37AX/0309190048.jpg)\nSome of the medications I now take due to cancer & chemo.\nImage mine, @luanne\n\nFrom about day 3 post chemo, I began getting hit with stomach cramps & diarrhea, & it didn't matter what I ate or drank, it always had the same result.  It got to a point where I dreaded eating & by around day 6 or 7, was hardly eating at all.  They give you Immodium (sp?) to help, but IMO it didn't work & actually seemed to make things worse!  One week post chemo my oncologist had me come back in for labs to check my blood.  I had dropped a total of 9 lbs since my last weigh in which had been the day of my infusion!\n\nOn day 9, I put in a call to my sister who was working on a cannabis care package for me.  I was in alot of stomach pain & was getting desperate. \n\nDay 10 my sister knocked on my door with said care package in hand.  THANK GOD!  Relief was soon to be found!  I consumed an edible during her visit.  About 2 hours later I consumed edible #2.  While it turned out that the quantity of 2 was way more then needed.....well...maybe not.  Regardless of the fact that I did have a great buzz going- my first pot high no less because I'd never tried it before- I found not only had my stomach cramping stopped, but I was very relaxed for the first time in a very long time & I had an overwhelming desire to EAT!  I also felt pretty darn happy.  HAPPY!  That's pretty significant considering my circumstances! I continued using edibles, but half the initial dose taken, for 2 more days & by day 12, I was no longer suffering stomach cramps & diarrhea!  \n\nMy strength & daily activities have increased & I no longer have to be on oxygen during the day-only at night! On day 14, I again returned to my Drs office for more labs.  My weigh in showed that I had regained 7lbs & my blood looked good!  \n\nI attribute all these wins to the inclusion of cannabis in my treatment!  My oncologist  also supports the use of cannabis in my treatment plan.  Awesome!\n\nWith less then a week left to my next infusion,  I'm trying to not only get as much done as possible before the 14th, but am trying to have as much as possible in place in preparation for all the various symptoms that may pop up.  \n\nWhile it may seem like i suffered few side effects, there are several more things that popped up.  Pink eye, various yeast infections, chemo rash, scalp tenderness & rash along with nerve pain to name a few.  My hair also started falling out day 12 post chemo & I followed that by pretty much cutting all my hair off.  I had a local stylist even things up today with a shave. \n\nOh sweet is the remaining few days I have til next treatment!  People keep saying to me \"you got this\" whereas, my motto really is one day at a time. Yep.  Just. One. Day. At. A. Time.\n\n![0105192347_20190107140228832.jpg](https://cdn.steemitimages.com/DQmcyKE2CHM3zyrVCmWQAhYRLjqvRVLk3Wr6RcDCqAkgjSM/0105192347_20190107140228832.jpg)",
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      "body": "I hear ya!  I started blogging again mainly to have a way to vent about the cancer & treatment i'm going thru now.  It helps to have a place to write about it.",
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      "body": "No. They won't let me. I have to pay too much. :( Some kind of new tax or whatever, and it's only for a visit. :( So no going home...",
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      "body": "Oh so busy at work lol, grave yard shift so seams like on my days off all i do is sleep and buy groceries for the next week haha. I do find time to craft but i just dont post them much due to it just isnt worth my time to do a blog about it and then only get like  10 cents lol. Im trying to think of other things to write about but havent had time to really get out and take pictures of nature and things. It seams like those kinds of blogs i do much better on??",
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      "body": "Isnt it so fun💗💗.  I love to craft too and when i seen this idea a few years ago i started doing it myself lol. I have a big collection of shells now from Florida that are perfect for painting on but now its hard to find the time lol. But they do make good canvases for art.",
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      "title": "My growing Obsession: Shell Art",
      "body": "![0123191603b_20190123160519035_20190123160655267.jpg](https://cdn.steemitimages.com/DQmWjHyyUZg6SSuVkDvqeUgXup9UCRs7Bpzuf3NHTGsjL3k/0123191603b_20190123160519035_20190123160655267.jpg)\n\n*Some of my shell art.* \nImage Mine\n\nI think I mentioned in passing my current fascination with painting & drawing on shells.  I had seen this idea posted on Pinterest & akways meant to give it a try but didn't get around to it until recovering from my first & following surgeries.  I couldn't find my sketch pad to do water color stuff but had come across two bags of small shells.  I figured there was no time like the present to give the Pinterest idea a try.  \n\nTrying turned into practicing with one color & patterns to multiple colors.  Now pretty much anything goes.  If I can draw it, it's going on a shell!\n\nThe picture above is of two that are part of a group of 8.  I'm now doing various themes & designs.  This series was a paisley nature print.  \n\nI've done color themes previously & tonight I've been doing nature scenes on  tiny little shells. \nCurrently I work with permanent colored markers but you can use acrylic paints & some other medias.  \n\nI actually intend to try this with acrylics but keep on working with markers.  In part this is due to convenience.  I can easily throw some shells into my purse with a few markers, & take it along to a Drs appointment & work on them while in the waiting room.  \n\nAcrylics & paints are much more stationary, requiring water & brushes.  Not really something easily packed for on the go.  \n\n![0124191851b_20190124201643418.jpg](https://cdn.steemitimages.com/DQmWSm9BZVCk5opkvXgCGTJD75PJrL7ChwHJBAkTHysqNYn/0124191851b_20190124201643418.jpg)\n\n*Mini shells with nature scenes.*\nImage mine\n\nI apologize that the photos aren't the greatest.  I hope to complete 9 or 10 in these little shells. \n\nIn cancer news, I actually got a little good news this week.  My breast cancer is stage 2 & has not spread anywhere else.  Further treatment will start in around 4 weeks.  Right now, it's hurry up & wait while my body heals from the lump-ectomy & other procedures.  \n\nWell...my shells are calling.  Back to it!\n\n![0105192347_20190107140228832.jpg](https://cdn.steemitimages.com/DQmcyKE2CHM3zyrVCmWQAhYRLjqvRVLk3Wr6RcDCqAkgjSM/0105192347_20190107140228832.jpg)",
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